Hello all
Im back,Good news yes manged travel ok alone this time much less pain just fatigue to contend with.Aunts funeral went well of course as funerls go very hard.
everyone managed to attend then we had full house for get togther afterwards.
cousins very much supported.
spent quality time with all family got well truly hugged by nephews.

back home and took several days recover tiredness and into well not well.
anyway so been home alot as u do if under par resting up.
few techical issues studies got get new software installed hoping to borrow off family save me £60.
meantime tutor sending me paper version of assignments to carry on with.



having issues with health hoping rheumy 2 weeks will shed light on this.

fainting,giddiness,sore chest around ribs,and other bits.
well im still here.
just had break for while slept alot grr.
obviously needed it.

hoping get some answers got alot test results to come back 2 weeks.
hughes sundrome.
more lupus tests.
still getting rashes and hives on face new meds have helped just not quote enough but stress of family troubles has broght this out so to eb expected.

anyway big thankyou to Alison,Debbie,amanda,barbs who been in touch with me.

hoping go home again soon once weather imporves so family can go out togther mums getting bit confused,dads ok now,brothers 1 top world other one well having treatment nothing serious.

uncle doing well despite losing wife,a sprtly 76 year old still drives.

cousins kids grown up 1 at uni and 1 at college.
managed get back in touch lot old school mates hoping for little get togther this summer back home.


so anyhow for now docs still say RA and possible lupus.
had few wobbles with liver results since november but now back to normal so didnt have stop meds lucky for me i know alot u have had to.

still same ra sypotoms yes doing my hand exercises does help bit,milder weather def better for me ra wsie than cold.
lupus wise warmer weather much worse.
but im alive so trying enjoy life with dear hubby.
hes doing well even gone back to abdminton they made him special trainers,they dont look nice but help him be bit more active.
as far as more surgery goes for hubby no way does hew ant any having had 4 years constant operations cartn blame him and well if it dont bother him to much why should he.
were lookin at going to his first ever CMT conference stay over hotel 2 nights at discount get input from consultants etc,use pools meet other CMT members not done so as yet.just ahd paperwork arrive yesterday even got a card for him to carry to warn medics of his conditon rather good for what little fee one pays a year.
hes thinking about it.
thats in april.weight dont mention that very bad put on alot,hoping to lsoe that so doing walks each day again anyway exercise good and important.
so wont attend nras one also.


anyway thinking of you.
lv melly

Sounds like you had good time meeting with all again,
Sorry to hear you not well again, hope you dont have to wait to long but i know when in pain 2 weeks feels like life time

Dear Melly, I am glad you managed the journey O.K, but sorry
that you had to go to a family funeral.
Hopefully you will be able to get enough rest to recover from the journey.
Best wishes,
Fiona

aww thanks all
yes been resting alot sleeping coming quite easily lucky for me guess body needs it!

joana cmt oh yes sorry should said its charcot marie tooth discease ,its also called Hereditary Motor and Sensory Neuropathy.
affecting by poor balance sitting still and standing,walking,chronic fatigue,mobiltity and dexterity problems.sensitivty to certain drugs,and some anaesthetics,lack of normal reflexes arms legs.

thats it i nutshell course not all have bad it varies,and there are many forms of it lol.

anyhow RA not to abd thanks more Suspected lupus side things and fibromylgia
posible inection see what bloods show.
may be a virus.


thanks re course yep tutor being so good flexible course timing for me.shall have restful weekend then its back into coursework.
been off MTX for 3 weeks due being unwell.
take care u to
melly

Hi Mel glad your back , but sorry your not well , hope it improves soon

Sophie x

Hello all
aww thanks


ohh yes lyn dont think we have met not sure been alot lyns on here,i been member since august 2008 on old site.
RA since 17,now suspected sle lupus been undergoing tests since summer 2009.
married no children yet stopped work 2006 to care for hubby who has form of muscular dystrpohy,called charcot marie tooth discease.
i became ill more then.
on methotrexate for ra side things and planequil for lupus rashes etc.
also have fibromylgia.
curently studying maths then english to re train basic skills to re enter diferent work was massage therpaist from home from 2004 to 2006.
ra wont allow me to re start.
docs did say if we can et inflammtion right donw and it stays down u can return it ahsnt goen down.
love cats got 2.
take care nice see you back.

melly

aww ok yes must missed you then afraid memory is poor lol anyone think im 90 or something.

yes postive attitude is something ive been working on since joining nras helped me alot in that area!
ahh your friend also cmt,yep hubby had it his brother father,mother suspectd to.
my hubby aprently the worst affected.

but not stopped him having full life.
hes doen sports works full time,less actvie now but hes fightign that.
brillaint sugeon whos done all latest techiniques on him,also great orthcotic therpaist,phsyio threw work.

thanks re studies.
yes im keen re train in therpay field just not a phsyical type therpay maybe ehrbs or something similar and re set up own buisness ocne improved my skills.

once ive dont maths english i will be onto learnin grasping excel as see its a evry sueful thing to know hpw to sue especially in working buisness enviroment.


yeah alot challenges still worked full time when first diagnsoed for 9 years was only after left that job as care assistant i foudn hard keep full tiem work not knowing i ahd fibro but feelin alot pain no docs that any good.
but you fight on dont you,had spell giving up on life sicne 2006 to 2008.
2009 saw so many health challenges i hit rock bottom and now fighting back.


determined 2010 to be a postive year despite losing a lovd one just recently andhavign god in my life and my old firends plus new ones on several forums i belong is making all difference.


ive been told alot more health challenges are to come as my illness progresses but the lupus they seem to be on ball with catching it before got beyond help so to speak.
take care chat soon.
lv hugs melly